{"id":1654,"date":"2025-12-02T09:07:11","date_gmt":"2025-12-02T01:07:11","guid":{"rendered":"https:\/\/www.ukm.my\/lestarifper\/?post_type=sdg&#038;p=1654"},"modified":"2026-04-17T09:11:35","modified_gmt":"2026-04-17T01:11:35","slug":"lawatan-kolaborasi-dan-program-cme-talk-advancing-newborn-screening-for-treatable-rare-diseases-in-malaysia","status":"publish","type":"sdg","link":"https:\/\/www.ukm.my\/lestarifper\/sdg\/lawatan-kolaborasi-dan-program-cme-talk-advancing-newborn-screening-for-treatable-rare-diseases-in-malaysia\/","title":{"rendered":"Lawatan Kolaborasi Dan Program Cme Talk: Advancing Newborn Screening For Treatable Rare Diseases In Malaysia"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"1654\" class=\"elementor elementor-1654\" data-elementor-settings=\"{&quot;ha_cmc_init_switcher&quot;:&quot;no&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2c81788 e-flex e-con-boxed wpr-particle-no wpr-jarallax-no 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elementor-size-default\">Lawatan Kolaborasi Dan Program Cme Talk: Advancing Newborn Screening For Treatable Rare Diseases In Malaysia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1ad393f e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"1ad393f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t<div class=\"elementor-element elementor-element-5a040e7 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"5a040e7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5b03be9 elementor-widget elementor-widget-ha-post-info happy-addon ha-post-info\" data-id=\"5b03be9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"ha-post-info.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"ha-inline-items ha-icon-list-items ha-post-info\">\n\t\t\t\t\t<li class=\"ha-icon-list-item elementor-repeater-item-cc69610 ha-inline-item\" itemprop=\"datePublished\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"ha-icon-list-icon\">\n\t\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-calendar-alt\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M0 464c0 26.5 21.5 48 48 48h352c26.5 0 48-21.5 48-48V192H0v272zm320-196c0-6.6 5.4-12 12-12h40c6.6 0 12 5.4 12 12v40c0 6.6-5.4 12-12 12h-40c-6.6 0-12-5.4-12-12v-40zm0 128c0-6.6 5.4-12 12-12h40c6.6 0 12 5.4 12 12v40c0 6.6-5.4 12-12 12h-40c-6.6 0-12-5.4-12-12v-40zM192 268c0-6.6 5.4-12 12-12h40c6.6 0 12 5.4 12 12v40c0 6.6-5.4 12-12 12h-40c-6.6 0-12-5.4-12-12v-40zm0 128c0-6.6 5.4-12 12-12h40c6.6 0 12 5.4 12 12v40c0 6.6-5.4 12-12 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wpr-equal-height-no e-con e-child\" data-id=\"74f8878\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t<div class=\"elementor-element elementor-element-6749f98 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"6749f98\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4c436a2 elementor-widget__width-auto elementor-widget elementor-widget-image\" data-id=\"4c436a2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"600\" height=\"600\" src=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/06\/SDG-17.jpg\" class=\"attachment-full size-full wp-image-379\" alt=\"\" srcset=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/06\/SDG-17.jpg 600w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/06\/SDG-17-300x300.jpg 300w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/06\/SDG-17-150x150.jpg 150w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/06\/elementor\/thumbs\/SDG-17-r7k94mbn8cn26bn0bxo2bht2zctpb28muk4sewnp5s.jpg 80w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-55bbe87 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"55bbe87\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0aab3f6 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"0aab3f6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ea7a613 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"ea7a613\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-40ddd36 elementor-widget elementor-widget-text-editor\" data-id=\"40ddd36\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">The Department of Pediatrics, Faculty of Medicine, National University of Malaysia (UKM), received a collaborative visit from a delegation of ImmunoIVD, a biotechnology company from Stockholm, Sweden, which is actively involved in the development and implementation of newborn screening tests for various rare genetic diseases such as Severe Combined Immunodeficiency (SCID), Spinal Muscular Atrophy (SMA), and X-linked Agammaglobulinemia (XLA).<\/span><\/p><p><span style=\"font-weight: 400;\">The visit aimed to strengthen strategic collaborative relationships between UKM and international industry partners in the fields of pediatric research, genetic screening, and the transfer of diagnostic technology knowledge.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ce7e313 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"ce7e313\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7fe72ee ha-image-grid--even elementor-widget elementor-widget-ha-image-grid happy-addon ha-image-grid\" data-id=\"7fe72ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;layout&quot;:&quot;even&quot;,&quot;enable_popup&quot;:&quot;yes&quot;}\" data-widget_type=\"ha-image-grid.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\n\t\t<div class=\"ha-image-grid__wrap hajs-isotope ha-lightbox--has\">\n\t\t\t\t\t\t\t\n\t\t\t\t<a href=\"#\" data-mfp-src=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2026\/04\/Advancing-Newborn-Screening-For-Treatable-Rare-Diseases-In-Malaysia.jpeg\" class=\"ha-image-grid__item ha-js-lightbox __fltr-1\">\n\t\t\t\t\t<img decoding=\"async\" width=\"1000\" height=\"750\" src=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2026\/04\/Advancing-Newborn-Screening-For-Treatable-Rare-Diseases-In-Malaysia.jpeg\" class=\"elementor-animation-grow\" alt=\"\" srcset=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2026\/04\/Advancing-Newborn-Screening-For-Treatable-Rare-Diseases-In-Malaysia.jpeg 1000w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2026\/04\/Advancing-Newborn-Screening-For-Treatable-Rare-Diseases-In-Malaysia-300x225.jpeg 300w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2026\/04\/Advancing-Newborn-Screening-For-Treatable-Rare-Diseases-In-Malaysia-768x576.jpeg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/>\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8f62f56 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"8f62f56\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-01e078e elementor-widget elementor-widget-text-editor\" data-id=\"01e078e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Objective:<br \/><\/strong><\/p><p><span style=\"font-weight: 400;\">Conduct collaborative discussion sessions focusing on the implementation of newborn screening programs for genetic diseases such as PID and related conditions.<\/span><\/p><p><span style=\"font-weight: 400;\">Explore opportunities for research collaboration and partnership between the UKM Department of Pediatrics, ImmunoIVD, and other strategic partners in programs or projects related to newborn screening in Malaysia.<\/span><\/p><p><span style=\"font-weight: 400;\">Organize a knowledge-sharing session (CME Talk) as part of the visit program to strengthen knowledge exchange and raise awareness among academic and clinical staff about the importance of early screening for genetic diseases in newborns.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0a8a349 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"0a8a349\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b9240ab elementor-widget elementor-widget-text-editor\" data-id=\"b9240ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Location \/ Venue of Program:<br \/><\/strong><span style=\"font-weight: 400;\">Bilik Mesyuarat Jabatan Pediatrik &amp; Bilik Seminar 3, Level 3, HTABTAR UKM<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9d601f1 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"9d601f1\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cf3418c elementor-widget elementor-widget-spacer\" data-id=\"cf3418c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1e117c0 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"1e117c0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-39d9d0e elementor-widget elementor-widget-heading\" data-id=\"39d9d0e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.ukm.my\/lestarifper\/sdg\/\">Back to report list<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3ded98a e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-equal-height-no e-con e-child\" data-id=\"3ded98a\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bd09c5d elementor-widget elementor-widget-spacer\" data-id=\"bd09c5d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Lawatan Kolaborasi Dan Program Cme Talk: Advancing Newborn Screening For Treatable Rare Diseases In Malaysia December 2, 2025 Ahmad Syafiq Yusof The Department of Pediatrics, Faculty of Medicine, National University of Malaysia (UKM), received a collaborative visit from a delegation of ImmunoIVD, a biotechnology company from Stockholm, Sweden, which is actively involved in the development and implementation of newborn screening tests for various rare genetic diseases such as Severe Combined Immunodeficiency (SCID), Spinal Muscular Atrophy (SMA), and X-linked Agammaglobulinemia (XLA). The visit aimed to strengthen strategic collaborative relationships between UKM and international industry partners in the fields of pediatric research, genetic screening, and the transfer of diagnostic technology knowledge. Objective: Conduct collaborative discussion sessions focusing on the implementation of newborn screening programs for genetic diseases such as PID and related conditions. Explore opportunities for research collaboration and partnership between the UKM Department of Pediatrics, ImmunoIVD, and other strategic partners in programs or projects related to newborn screening in Malaysia. Organize a knowledge-sharing session (CME Talk) as part of the visit program to strengthen knowledge exchange and raise awareness among academic and clinical staff about the importance of early screening for genetic diseases in newborns. Location \/ Venue of Program:Bilik Mesyuarat Jabatan Pediatrik &amp; Bilik Seminar 3, Level 3, HTABTAR UKM Back to report list<\/p>\n","protected":false},"author":2,"featured_media":1655,"template":"elementor_header_footer","meta":[],"categories":[20],"tags":[22],"class_list":["post-1654","sdg","type-sdg","status-publish","has-post-thumbnail","hentry","category-sgd-17","tag-22"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg\/1654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg"}],"about":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/types\/sdg"}],"author":[{"embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/users\/2"}],"version-history":[{"count":4,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg\/1654\/revisions"}],"predecessor-version":[{"id":1659,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg\/1654\/revisions\/1659"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/media\/1655"}],"wp:attachment":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/media?parent=1654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/categories?post=1654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/tags?post=1654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}