{"id":797,"date":"2025-02-25T14:11:00","date_gmt":"2025-02-25T06:11:00","guid":{"rendered":"https:\/\/www.ukm.my\/lestarifper\/?post_type=sdg&#038;p=797"},"modified":"2026-04-10T09:48:09","modified_gmt":"2026-04-10T01:48:09","slug":"sambutan-hari-penyakit-jarang-jumpa-2025","status":"publish","type":"sdg","link":"https:\/\/www.ukm.my\/lestarifper\/sdg\/sambutan-hari-penyakit-jarang-jumpa-2025\/","title":{"rendered":"Sambutan Hari Penyakit Jarang Jumpa 2025"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"797\" class=\"elementor elementor-797\" data-elementor-settings=\"{&quot;ha_cmc_init_switcher&quot;:&quot;no&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2c81788 e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-parent\" data-id=\"2c81788\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t<div 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class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0691929 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"0691929\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-48a2724 elementor-widget elementor-widget-ha-post-title happy-addon ha-post-title\" data-id=\"48a2724\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"ha-post-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"ha-post-title elementor-size-default\">Sambutan Hari Penyakit Jarang Jumpa 2025<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1ad393f e-con-full e-flex wpr-particle-no wpr-jarallax-no 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48.4zm162.7-84.1c-24.4-31.4-62.1-51.9-105.1-51.9-10.2 0-26 9.6-57.6 9.6-31.5 0-47.4-9.6-57.6-9.6-42.9 0-80.6 20.5-105.1 51.9C61.9 339.2 48 299.2 48 256c0-110.3 89.7-200 200-200s200 89.7 200 200c0 43.2-13.9 83.2-37.3 115.9z\"><\/path><\/svg>\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"ha-icon-list-text ha-post-info__item ha-post-info__item--type-author\">\n\t\t\t\t\t\t\t\t\t\tAhmad Syafiq Yusof\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-74f8878 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"74f8878\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t<div class=\"elementor-element elementor-element-6749f98 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" 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decoding=\"async\" src=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/elementor\/thumbs\/SDG-9-r7k944gpmhym1qcy87y5i4bbp19q8t9qg3qkane6g0.jpg\" title=\"SDG &#8211; English\" alt=\"SDG - English\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9326ff2 elementor-widget__width-auto elementor-widget elementor-widget-image\" data-id=\"9326ff2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/06\/SDG-17.jpg\" data-elementor-open-lightbox=\"no\">\n\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/elementor\/thumbs\/SDG-17-r7k94mbn8cn26bn0bxo2bht2zctpb28muk4sewnp5s.jpg\" title=\"SDG &#8211; English\" alt=\"SDG - English\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-55bbe87 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"55bbe87\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0aab3f6 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"0aab3f6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ea7a613 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"ea7a613\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-40ddd36 elementor-widget elementor-widget-text-editor\" data-id=\"40ddd36\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-sheets-root=\"1\">Hari Penyakit Jarang Jumpa disambut pada hari terakhir bulan Februari setiap tahun, dengan tujuan utama meningkatkan kesedaran masyarakat umum mengenai penyakit jarang jumpa serta kesannya terhadap kehidupan pesakit dah ahli keluarga. Pada tahun 2025, sambutan ini jatuh pada 28 Februari dengan tema sambutan tahun tersebut adalah &#8216;More Than You Can Imagine&#8217;, yang menekankan bahawa penyakit jarang bukan sekadar statistik, tetapi melibatkan pesakit sebenar dengan impian, harapan, dan perjuangan yang lebih besar daripada yang kita bayangkan.<br \/><br \/>Bagi menyokong inisiatif ini, Fakulti Perubatan Universiti Kebangsaan Malaysia (UKM) melalui Jabatan Pediatrik, dengan kerjasama Unit Genetik Hospital Tunku Ampuan Besar Tuanku Aishah Rohani, Hospital Pakar Kanak-Kanak UKM (HosTAR) serta dengan sokongan Persatuan Kaunseling Genetik Malaysia, telah berjaya menganjurkan Sambutan Hari Penyakit Jarang Jumpa 2025 di Lobi Utama Hospital Tunku Ampuan Besar Tuanku Aishah Rohani, Hospital Pakar Kanak-Kanak UKM pada 25 dan 26 Februari 2025,. Program ini bertujuan untuk meningkatkan kesedaran dalam kalangan pasukan perubatan serta masyarakat mengenai penyakit jarang jumpa, selain memaparkan peranan aktif UKM dalam rawatan serta penyelidikan berkaitan penyakit jarang jumpa di Malaysia. Sambutan ini mendapat sambutan menggalakkan dengan kehadiran kira-kira 200 peserta yang terdiri daripada profesional perubatan, pesakit dan keluarga mereka, pelajar serta masyarakat umum.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ce7e313 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"ce7e313\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7fe72ee ha-image-grid--even elementor-widget elementor-widget-ha-image-grid happy-addon ha-image-grid\" data-id=\"7fe72ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;layout&quot;:&quot;even&quot;,&quot;enable_popup&quot;:&quot;yes&quot;}\" data-widget_type=\"ha-image-grid.default\">\n\t\t\t\t<div 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https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/02\/IMG_3138-SHARIFAH-AZWEEN-SYED-OMAR-1024x768.jpg 1024w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/02\/IMG_3138-SHARIFAH-AZWEEN-SYED-OMAR-768x576.jpg 768w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/02\/IMG_3138-SHARIFAH-AZWEEN-SYED-OMAR-1536x1152.jpg 1536w, https:\/\/www.ukm.my\/lestarifper\/wp-content\/uploads\/2025\/02\/IMG_3138-SHARIFAH-AZWEEN-SYED-OMAR-2048x1536.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/>\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8f62f56 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"8f62f56\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-01e078e elementor-widget elementor-widget-text-editor\" data-id=\"01e078e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Objective:<br \/><\/strong><span data-sheets-root=\"1\">Memberi pengetahuan dan kesedaran kepada pasukan perubatan dan masyarakat mengenai Penyakit Jarang Jumpa.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0a8a349 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"0a8a349\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b9240ab elementor-widget elementor-widget-text-editor\" data-id=\"b9240ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Department:<br \/><\/strong>Department of Paediatric<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-2c8ed3c e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"2c8ed3c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-25f62ef elementor-widget elementor-widget-text-editor\" data-id=\"25f62ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Program Head:<\/strong><br \/><span data-sheets-root=\"1\">Sharifah Azween Syed Omar<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9d601f1 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"9d601f1\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cf3418c elementor-widget elementor-widget-spacer\" data-id=\"cf3418c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1e117c0 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"1e117c0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-39d9d0e elementor-widget elementor-widget-heading\" data-id=\"39d9d0e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.ukm.my\/lestarifper\/sdg\/\">Back to report list<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3ded98a e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no e-con e-child\" data-id=\"3ded98a\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bd09c5d elementor-widget elementor-widget-spacer\" data-id=\"bd09c5d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Sambutan Hari Penyakit Jarang Jumpa 2025 February 25, 2025 Ahmad Syafiq Yusof Hari Penyakit Jarang Jumpa disambut pada hari terakhir bulan Februari setiap tahun, dengan tujuan utama meningkatkan kesedaran masyarakat umum mengenai penyakit jarang jumpa serta kesannya terhadap kehidupan pesakit dah ahli keluarga. Pada tahun 2025, sambutan ini jatuh pada 28 Februari dengan tema sambutan tahun tersebut adalah &#8216;More Than You Can Imagine&#8217;, yang menekankan bahawa penyakit jarang bukan sekadar statistik, tetapi melibatkan pesakit sebenar dengan impian, harapan, dan perjuangan yang lebih besar daripada yang kita bayangkan. Bagi menyokong inisiatif ini, Fakulti Perubatan Universiti Kebangsaan Malaysia (UKM) melalui Jabatan Pediatrik, dengan kerjasama Unit Genetik Hospital Tunku Ampuan Besar Tuanku Aishah Rohani, Hospital Pakar Kanak-Kanak UKM (HosTAR) serta dengan sokongan Persatuan Kaunseling Genetik Malaysia, telah berjaya menganjurkan Sambutan Hari Penyakit Jarang Jumpa 2025 di Lobi Utama Hospital Tunku Ampuan Besar Tuanku Aishah Rohani, Hospital Pakar Kanak-Kanak UKM pada 25 dan 26 Februari 2025,. Program ini bertujuan untuk meningkatkan kesedaran dalam kalangan pasukan perubatan serta masyarakat mengenai penyakit jarang jumpa, selain memaparkan peranan aktif UKM dalam rawatan serta penyelidikan berkaitan penyakit jarang jumpa di Malaysia. Sambutan ini mendapat sambutan menggalakkan dengan kehadiran kira-kira 200 peserta yang terdiri daripada profesional perubatan, pesakit dan keluarga mereka, pelajar serta masyarakat umum. Objective:Memberi pengetahuan dan kesedaran kepada pasukan perubatan dan masyarakat mengenai Penyakit Jarang Jumpa. Department:Department of Paediatric Program Head:Sharifah Azween Syed Omar Back to report list<\/p>\n","protected":false},"author":2,"featured_media":798,"template":"elementor_header_footer","meta":[],"categories":[13,20,6,7,12],"tags":[22],"class_list":["post-797","sdg","type-sdg","status-publish","has-post-thumbnail","hentry","category-sgd-10","category-sgd-17","category-sgd-3","category-sgd-4","category-sgd-9","tag-22"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg\/797","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg"}],"about":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/types\/sdg"}],"author":[{"embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/users\/2"}],"version-history":[{"count":10,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg\/797\/revisions"}],"predecessor-version":[{"id":1022,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/sdg\/797\/revisions\/1022"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/media\/798"}],"wp:attachment":[{"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/media?parent=797"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/categories?post=797"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ukm.my\/lestarifper\/wp-json\/wp\/v2\/tags?post=797"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}